All staff work on a part-time basis on Tuesdays, Wednesdays and Thursdays. They are:
Executive Director
Nickie Roberts joined the Trust in September 2009 in the new role of executive director. An important element of Nickie's role is to ensure the infrastructure and systems of the Trust are well established to allow it to grow successfully, to develop awareness of MSA and the work of the Trust and, importantly, to develop its range of services to support those whose lives are affected by MSA. Nickie has past experience of working in healthcare charities. As executive director, she contributed to the establishment and development of The Prostate Cancer Charity and The Blood Pressure Association. Before moving to the voluntary sector, she worked in public relations as Head of Communications at The Royal College of General Practitioners, and remains a Member of the Chartered Institute of Public Relations.
Information and Support Officer
Jackie Davis joined the Trust in April 2010 as its first staff member dedicated to coordinating and developing its information and support services. In this capacity, Jackie works closely with the MSA Specialist Nurses and volunteer Support Group Leaders; her work also covers the review and dissemination of materials on MSA to people whose lives are affected by it, as well as to healthcare professionals. Increasingly, Jackie and Nickie will be working on building the profile of MSA and the Trust to help reduce the isolation many people feel from living with a rare and largely unknown disorder, by improving the general public and medical community's awareness and knowledge of MSA.
Administrator
Lyn Shaw joined the Trust in July 2010 as its part-time Administrator. Lyn has extensive experience of office systems and contributed to the Trust as a volunteer before taking on her current position. Lyn works closely with Nickie and Jackie on all aspects of the Trust's work, and is key to the smooth running of the charity.
Fundraiser
The Trust is currently recruiting into this newly created position.
MSA Specialist Nurses
The Trust contracts the services of two nurses who, between them, cover the UK, Scotland and Ireland. Samantha Pavey is the first point of contact for people living in Wales and those living South of the Lincolnshire, Nottinghamshire, Derbyshire and Cheshire borders. Katie Rigg is the first point of contact for people living in Lincolnshire, Nottinghamshire, Derbyshire, Cheshire and all areas North of these counties, plus Scotland and Ireland.
Samantha Pavey (R.G.N.) - MSA Specialist Nurse for the Southern Region
Samantha trained at Addenbrookes Hospital in Cambridge. She has over 25 years of experience and has worked in neurology most of her career, including Atkinson Morleys Hospital in Wimbledon and later as a Ward Sister in Hertfordshire. She has worked in the hospice setting and within the charity sector at management level. Most recently she worked as a Parkinsons Disease Nurse Specialist and undertook further studies at London South Bank University.
Contact: 0203 371 0003
samantha.msa@googlemail.com
MSA Specialist Nurse for the Northern Region Katie Rigg is a registered general adult nurse with specialist qualifications in both community nursing and palliative care. Over a number of years, she has gained experience of working in hospitals, community services, hospices and voluntary organisations. She has a particular interest in neuro-disability and neuro-degenerative conditions.
Contact: 01434 381932
katie.msa@cybermoor.org.uk